Day 5 & 6

Saturday

Day started with a visit from the neurologist to explain what they had learned from the seizures she had through the night.  As the day went on, her seizures did get longer and more violent.  She also was experiencing longer recovery time than she was used to.  It took several minutes after the seizures before she could move her right hand.  First time that happened, we kept asking her to squeeze her hand, and when she couldn’t it really scared her.  We learned to wait several minutes after her seizures before doing the standard neurological test (squeeze fingers with each hand, push feet up/down, check pupils, ask what day it is, etc, etc.).

After talking to the neurologist again, they did decide to start her on some low doses of anti-seizer medication.  That seemed to help a bit, as she didn’t have as many seizures Saturday night, and they also weren’t as long or violent.

After last of the visitors left Saturday night, and it was just three of us, it hit hard that we have to do yet another surgery, and that it appears the seizures are originating towards the rear of the frontal lobe, near the motor strip.  Wondering why we’re always the unique case.

Sunday

Sunday was a good day.  The anti-seizure medication, even though it was a low dose, seemed to help a lot with the seizures.  They are still longer and more intense than when she is fully medicated, but better than without any medication.  She only had a couple Saturday night, and only a few during the day.  Her swelling is way down, she is talking a lot more, and she is much more alert and engaging.  We’ve been able to talk to her about what she’s been through, and what she still needs to go through.  Her spirits are still up.